March for Babies

Thursday, November 11, 2010

Just Got the Call

The Audiogram came back fine.

The Echocardiogram "looks great!"

The CT Scan was all clear.

The AFP (cancer marker in the blood) was 2.2.
(<8= negative).


We are still in REMISSION people!


Woo Hoo!


We will do blood work again in 6 months along with a chest X-Ray. The Audiogram we will check again next year and the Echo will not need to be done for two years. *tap-tap-tappity-tap-tap* (That is the sound of my heart and feet doing the happy dance.)


Such great news after a REALLY hard week getting all of those tests completed. Amanda was terrified by going back to the clinic, more specifically by the CT scans, and the fear is showing up in her behaviors. She is grasping for some sort of control wherever she can get it. I am hoping she is feeling better soon. This morning was a rough go. She can be head-strong, overly emotional and uncooperative on the best of days, so to have all of those things amplified is just so hard. I know why she is acting this way, but it does not change the fact that I need her to put pants on before we can go to school. *sigh*


We are heading to Sesame Street Live: Elmo's Healthy Heroes this weekend. That should be a good time. 


AND, I was just contacted this morning by Make-A-Wish about the Macy's Santa Clause (the actual Macy's Thanksgiving Day Parade Santa) stopping by Woodland Mall on his bus tour and the Wish Kids get to be first in line to meet Santa during his visit!


AND, speaking of Make-A-Wish, they put out a calendar every year highlighting wish kids, staff, and philanthropists, etc. who are important to their organization. For their 2011 calendar, guess who got the spot of Miss September...our very own Amanda. It is just the cutest thing ever. They chose a picture of her kissing Elmo during their meeting in 2009. This is the national calendar, so all over the country in the month of September people will be seeing our super star with her favorite little red monster.


All kinds of goodness to buoy my spirits while we battle the emotional/behavioral backlash from the testing this week. I am literally shaking, not sure if it is from relief, fried nerves or this morning's ingestion of caffeine. Looking forward to smoothing things out over the next week and returning to "normal"




VHMPrincess said...

What wonderful news!!!!!!!!!!!!!!!!!!!!!!!!!!!

Miss W said...

Oh, this is an AWESOME update!!! I am so happy for you!!!!!!!

Thalia said...

fantastic, I'm so pleased!