March for Babies

Wednesday, July 2, 2008

Here We Go Again

Just to make sure we didn't start taking our beautiful thriving daughter for granted, Karma came up from behind and smacked us on the back of the head. After being born at 24 weeks and getting through 105 days in the NICU, Amanda went on to develop quite normally. She suffered a slight speech delay and some fine and gross motor skills have been helped along with occupational therapy, but for the most part people think she is an average charming active and inquisitive two-year-old. Now she is all of those things with a tumor in her liver called hepatoblastoma which has metastasized in the lungs just a bit.
This is the beginning of our journey to health. We will get her there. It will not be quick. It will not be pleasant all of the time. It will not go down as one of my favorite experiences in life. But we will enjoy each moment we share on this journey and love each other as if all of our lives depend on it, because they do.

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