Communication

Yeah, that would be nice. After packing for a three day stay in the hospital expecting nothing different from last time I now fnd out that the new medicine is a 96 hour IV. Oh, and it cannot be started until 8 hours after the Cisplatin is started. We are SO not getting out of here on Saturday.

Mere :O)
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Um, Okay

Well, the phone rang but it was not the call I was really expecting. Manda and I will be checking into the hospital today for another three days of inpatient chemo. This will include a new drug she has not had before. Apparently it will take three weeks for her blood counts to recover from this dose of chemo. We will meet with the surgeon on October 2nd to discuss the operation and recovery. Surgery to remove the tumor on her liver is scheduled for October 9th. This gives Manda time to recover from the chemo and also allows the surgeon to go on his 2-1/2 week vacation. (They have assured me that the vacation has nothing to do with this new dose of chemo.) We won't be doing a complete four week cycle of chemo at this point, just this one dose and then time for her to rest before surgery.
So, wish us luck! I think it is going to be a long three days.

Mere :O)
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Waiting for the Phone to Ring

Well we are waiting for the phone to ring. We are waiting to hear back on
what her blood work shows as her new AFP. This will tell us how she is
responding to the chemo. We are waiting to hear back on what this morning's
CT scan showed. This will tell us if we are ready for surgery. The BAER
test showed she has not lost any hearing in either ear but her left ear was
quite full of wax. We will have to look into that. Don't want it to become
a problem with her hearing in the future.

SO...waiting...

Mere :0)

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Take What You Can Get

I just said, "Hello pretty girl! Love you"!
She said, "Thanks" and walked away.

Mere :O)
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Really?

My kid just said the word "watermelon" plain as day!

Mere :O)
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TGIF

I knew this would be a long hard week and I was proven right once again. With afternoon appointments for chemo every day Amanda was not able to get her naps in like usual. This coupled with a kid who feels sick from the chemo and has low numbers leads to lots of time outs and crying. She had the time outs, we both cried, but not at the same time.
Next week we are free! No appointments! The next week we have a CT scan on Tuesday and will await surgery. We should not have to wait long. The ball will rest this next week and then begin to roll...quickly.

Mere :O)
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Chemo-a-go-go

I mentioned the fever first hing to the nurse this morning and she had one of the doctors already attending the inpatient oncology patients take a quick peak at Manda before we got the ball rolling. He checked her over from top to bottom and declared her fit for chemo. We had the first of five infusions. She'll go back every day this week for more. This one can make her sick to her stomach so we are also dosing her with Zofran to keep the gagging away. It worked last time, fingers crossed for another good week. We should be finding out this week when she'll have her CT scan and then we are off to the races scheduling surgery to get that sucker out of there. I have a feeling time is about to speed up, like I am going to blink and it will be Christmas.
We are back to good news. Getting ready for our Labor Day cook out.

Mere :O)
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